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“A Twist of Lyme: Battling a Disease That ‘Doesn’t Exist"

REC TOPPER: 'A Twist of Lyme: Battling a Disease That ‘Doesn’t Exist'

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outdoors Grand Forks,North Dakota 58203 http://www.grandforksherald.com/sites/default/files/styles/square_300/public/field/image/050414.O.GFH_.RECTOPPER-Twist%20of%20Lyme%20book%20cover.jpg?itok=80dxFgS6
Grand Forks Herald
REC TOPPER: 'A Twist of Lyme: Battling a Disease That ‘Doesn’t Exist'
Grand Forks North Dakota 375 2nd Ave. N. 58203

Tick season is at hand, and anyone venturing into the woods should be especially vigilant about checking for deer ticks, the pinhead-size parasites that are known to transmit Lyme disease.

Lyme disease initially presents flu-like symptoms, including headaches, fatigue, joint swelling, muscle pain and gastrointestinal distress. But as the disease progresses, it can become “The Great Imitator,” mimicking the symptoms of depression, Fibromyalgia, Chronic Fatigue Syndrome, multiple sclerosis, Parkinson’s disease and Alzheimer’s, as well as more than 350 other diseases.

Now, in her new book, “A Twist of Lyme: Battling a Disease That ‘Doesn’t Exist,’ ” Andrea Caesar chronicles her life with Lyme disease from the age of 11 through her diagnosis and treatment more than 25 years later. Caesar says she suffers from “chronic” Lyme disease, a controversial diagnosis in the medical community, and faces staggering symptoms and multiple related infections everyday — all because of one tick bite nearly 30 years ago.

“I started ‘A Twist of Lyme’ as a blog to help process my own thoughts and emotions and as a means of explaining to my friends and family how I was feeling and what was happening during treatment,” Caesar says in a news release promoting the book. “Before I knew it, I had 29,000 followers, many suffering from chronic Lyme themselves. I decided to write a book because I saw a need for people to understand what it’s like in ‘the trenches,’ the emotional and physical toll that treatment takes on a person fighting this terrible disease.

“This is not a medical book written by a doctor, and it’s not a collection of poems or pictures. It’s a real-time account of the day-to-day life of someone being treated for Lyme — the good, the bad, and the ugly.”

“A Twist of Lyme” retails for $14.95 and is available at amazon.com.

  • More info: twistoflymebook.com.
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